System Atlas
Atlas
CompanyOther Services (except Public Administration)Non-profit

National Organization for Rare Disorders

United Statesrarediseases.org

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Mapped from public sources. First mapped Updated

Overview

What it is

What is public so far is its identity and 15 facts from open registries, each with its source and date. How it is built inside has not been mapped yet.

Public map3 components
    Open the map
    02

    Map

    Deepen this

    Map how National Organization for Rare Disorders is built

    We know who National Organization for Rare Disorders is from public registries. Its parts, the software it runs and how work and money move through it have not been researched yet. Research reads its website, job posts, reviews and filings and maps what it finds, each item with its source.

    Is this yours? Claim it and map it yourself

    Deepen this profile

    55 primitives with nothing found yet

    They sit in 8 parts of the business. Pay for focused research and what it finds is public for everyone.

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    What a map would hold

    Part by part, what a map of National Organization for Rare Disorders would hold. Nothing is mapped yet, so every primitive reads as not mapped.

    1 primitive mapped in 9 parts · 55 with nothing found yet

    1. Demand

      winning customers

      0 of 7 primitives mapped · 0 components

      Not mapped yet (7)
      • Mission and cause
      • Donor and member acquisition
      • Development team
      • Program fees and suggested gifts
      • Proposals to funders
      • Grant agreements and service contracts
      • Fundraising

    2. Supply

      making or delivering the offer

      0 of 9 primitives mapped · 0 components

      Not mapped yet (9)
      • Program design
      • Program planning
      • Procurement
      • Partners and contractors
      • Program delivery
      • Program quality
      • Facilities and donated goods
      • Logistics and fulfilment
      1 more not mapped
      • Programs

    3. Customers

      keeping them

      0 of 6 primitives mapped · 0 components

      Not mapped yet (6)
      • Participant intake
      • Participant and supporter care
      • Donor stewardship
      • Participant records
      • Donor and member retention
      • Donor records

    4. Money

      getting paid and paying

      0 of 9 primitives mapped · 0 components

      Not mapped yet (9)
      • Grant claims and drawdowns
      • Pledges and receivables
      • Payments and payables
      • Payroll
      • Accounting and close
      • Budgets by fund
      • Reserves
      • Grants management
      1 more not mapped
      • Restricted funds and cost allocation

    5. People

      who does the work

      0 of 7 primitives mapped · 0 components

      Not mapped yet (7)
      • Org structure
      • Staff recruiting
      • Onboarding and training
      • Performance and pay
      • Scheduling and capacity
      • Policies and culture
      • Volunteers

    6. Systems

      tools and data

      0 of 6 primitives mapped · 0 components

      Not mapped yet (6)
      • Core system of record
      • Communication tools
      • Integrations
      • Reporting and dashboards
      • Data management
      • Security and access

    7. Control

      rules the company runs under

      0 of 6 primitives mapped · 0 components

      Not mapped yet (6)
      • Charitable registration and tax status
      • Charity regulation
      • Insurance and risk
      • Legal and contracts administration
      • Health, safety and environment
      • Reporting to funders

    8. Direction

      deciding where it goes

      0 of 5 primitives mapped · 0 components

      Not mapped yet (5)
      • Strategy and theory of change
      • Board governance
      • Management cadence
      • Learning and improvement
      • Impact measurement

    9. Specific to this company

      3 components

      • Outside the industry schema3
    03

    Figures

    Every public fact with how sure it is, where it comes from and when it was stated.

    • Revenue$66.4MInferred · high confidence
      wikidata.org: show sources
      • Wikidata Q16930739wikidata.org
        “Revenue 66,397,453 USD as of 2023 (Wikidata P2139). Cited: https://projects.propublica.org/nonprofits/organizations/133223946”
        Quoted sourceregistryRead 2 Nov 2026Open at the quote
      as of 2023
    • Foundedin 1982Inferred · high confidence
      wikidata.org: show sources
      • Wikidata Q16930739wikidata.org
        “Founded in 1982 (Wikidata P571).”
        Quoted sourceregistryRead 2 Nov 2026Open at the quote
      as of 2 Nov 2026
    • HeadquartersDanburyInferred · high confidence
      wikidata.org: show sources
      • Wikidata Q16930739wikidata.org
        “Headquarters: Danbury (Wikidata Q49198).”
        Quoted sourceregistryRead 2 Nov 2026Open at the quote
      as of 2 Nov 2026
    • Legal form501(c)(3) organizationInferred · high confidence
      wikidata.org: show sources
      • Wikidata Q16930739wikidata.org
        “Legal form: 501(c)(3) organization (Wikidata Q18325436).”
        Quoted sourceregistryRead 2 Nov 2026Open at the quote
      as of 2 Nov 2026
    • IRS EIN13-3223946Inferred · high confidence
      irs.gov: show sources
      • IRS Exempt Organizations Business Master File (eo1.csv)irs.gov
        “Employer Identification Number 133223946 (NATIONAL ORGANIZATION FOR RARE DISORDERS INC, DANBURY, CT). IRS Business Master File eo1.csv, row EIN 133223946: NAME=NATIONAL ORGANIZATION FOR RARE DISORDERS INC, TAX_PERIOD=202512.”
        Quoted sourceregistryRead 2 Nov 2026Open at the quote
      as of 31 Dec 2025
    • Tax status501(c)(3)Inferred · high confidence
      irs.gov: show sources
      • IRS Exempt Organizations Business Master File (eo1.csv)irs.gov
        “Exempt under section 501(c)(3). IRS Business Master File eo1.csv, row EIN 133223946: SUBSECTION=03, TAX_PERIOD=202512.”
        Quoted sourceregistryRead 2 Nov 2026Open at the quote
      as of 31 Dec 2025
    • Revenue$34.6MInferred · high confidence
      irs.gov: show sources
      • IRS Exempt Organizations Business Master File (eo1.csv)irs.gov
        “Revenue of $34,577,196 for the tax period ending 2025-12-31 (as of 2025), from the latest return. IRS Business Master File eo1.csv, row EIN 133223946: REVENUE_AMT=34577196, TAX_PERIOD=202512.”
        Quoted sourceregistryRead 2 Nov 2026Open at the quote
      FY2025
    • Total assets$66.9MInferred · high confidence
      irs.gov: show sources
      • IRS Exempt Organizations Business Master File (eo1.csv)irs.gov
        “Assets of $66,900,297 for the tax period ending 2025-12-31 (as of 2025). IRS Business Master File eo1.csv, row EIN 133223946: ASSET_AMT=66900297, TAX_PERIOD=202512.”
        Quoted sourceregistryRead 2 Nov 2026Open at the quote
      as of 31 Dec 2025
    • Total income$43.8MInferred · high confidence
      irs.gov: show sources
      • IRS Exempt Organizations Business Master File (eo1.csv)irs.gov
        “Income of $43,838,797 for the tax period ending 2025-12-31 (as of 2025). IRS Business Master File eo1.csv, row EIN 133223946: INCOME_AMT=43838797, TAX_PERIOD=202512.”
        Quoted sourceregistryRead 2 Nov 2026Open at the quote
      as of 31 Dec 2025
    • Exempt since1989-05Inferred · high confidence
      irs.gov: show sources
      • IRS Exempt Organizations Business Master File (eo1.csv)irs.gov
        “IRS ruling date 1989-05 (when exemption was recognized).”
        Quoted sourceregistryRead 2 Nov 2026Open at the quote
      as of 31 Dec 2025
    • Foundation typeorganization that receives a substantial part of its support from a governmental unit or the general publicInferred · high confidence
      irs.gov: show sources
      • IRS Exempt Organizations Business Master File (eo1.csv)irs.gov
        “Foundation code 15: organization that receives a substantial part of its support from a governmental unit or the general public.”
        Quoted sourceregistryRead 2 Nov 2026Open at the quote
      as of 31 Dec 2025
    • Rorhttps://ror.org/04gk5xv95Inferred · high confidence
      ror.org: show sources
      • ROR record 04gk5xv95ror.org
        “Research Organization Registry identifier https://ror.org/04gk5xv95 (ROR 04gk5xv95, record updated 2024-12-11).”
        Quoted sourceregistryRead 2 Nov 2026Open at the quote
      as of 11 Dec 2024
    • Research typenonprofit, funderInferred · high confidence
      ror.org: show sources
      • ROR record 04gk5xv95ror.org
        “Organization type: nonprofit, funder (ROR 04gk5xv95, record updated 2024-12-11).”
        Quoted sourceregistryRead 2 Nov 2026Open at the quote
      as of 11 Dec 2024
    • Foundedin 1982Inferred · high confidence
      ror.org: show sources
      • ROR record 04gk5xv95ror.org
        “Established in 1982 (ROR 04gk5xv95, record updated 2024-12-11).”
        Quoted sourceregistryRead 2 Nov 2026Open at the quote
      as of 11 Dec 2024
    • HeadquartersDanbury, United StatesInferred · high confidence
      ror.org: show sources
      • ROR record 04gk5xv95ror.org
        “Located in Danbury, United States (ROR 04gk5xv95, record updated 2024-12-11).”
        Quoted sourceregistryRead 2 Nov 2026Open at the quote
      as of 11 Dec 2024
    04

    Timeline

    Dated events from the sources, newest first. Funding and ownership carry the date the source stated them.

    1. 1982
      FoundedFounded
      ror.org
    2. 1982
      FoundedFounded
      wikidata.org
    05

    On the market

    What data about it the marketplace holds, by type, and the listings its owner has open with their price.

    Supply on the market board
    TypePointsVerified30 days
    Data180+18
    Figures150+15
    Official links70+7
    Identifiers30+3
    Revenue20+2
    Asks: listings open for National Organization for Rare Disorders

    No listing is open. The owner can list its verified map on the marketplace.

    06

    Sources

    Only what anyone could find on the open web appears here: company sites, registries, filings, reviews and press. Private material never shows on a public page.

    4 pages on 4 sites, each linked to the exact address it was read at.Sign in free to see the findings each page supports

    Evidence
    How sure each item is
    • Verified0
    • Self-reported0
    • Inferred18
    • Low confidence0
    Sources most relied on
    • irs.gov7 items · read
    • wikidata.org5 items · read
    • ror.org5 items · read
    • apps.irs.gov1 item · read
    Open-web sources cited
    4

    Identifiers

    Its entries in open registers, each linked to its record where the register has one.

    US EIN
    13-3223946wikidata.org
    ROR
    04gk5xv95wikidata.org
    Wikidata
    Q16930739
    07

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    08

    Verification

    Is this your company?
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    How the findings stand
    Public items
    18

    No reader has confirmed or flagged a finding yet. Signed-in readers confirm or flag each finding against its source; three independent confirmations mark it community confirmed. How verification works